Hello Dear Friends and Family,
I call this an update "of sorts" as we really do not have much to update. Several have asked about the test results of Monday's BSGI test, but we still have not heard anything back. Apparently St Paul Radiology did not properly send over the previous mammogram image for the Rads at St John's to use as a comparison (same Rad group reads both?), so as of tonight our primary care doctor did not have any results yet to share (also a reason I haven't blogged for a few days).
Michelle has not been feeling really well lately (the last few days). She has had a headache since Monday night and has had a lot of pain return. She contacted her Immunologist again who is now saying he wants to put Michelle back on more steroids. Michelle's prior steroid pill prescription has tapered off this last Monday so we were hoping that maybe Michelle was feeling some of the "withdrawal" that we were expecting? Michelle went in this evening at the Immunologist's request to get another baseline blood draw for when they start her on steroids again - so we should hear the results of that tomorrow. They will check CK levels and several other things too. An item of praise is that Michelle tested out driving again on Wednesday night and this morning was able to take the girls to Shakopee for an outing with the Boschs and Beckerings! I think she really enjoyed the freedom that comes with that!
The other news is that we're an "empty house" again. We were sad to say "Goodbye" to my brother Mark who left yesterday morning back to West Michigan. We really appreciated the time he spent taking care of the girls, walks to the park, making cookies from scratch with Julia, and two fabulous dinners for all of us! I'm attaching two pictures of one of the park times (Jaclyn and Julia still ask when "Uncle Whiskers" is coming back).
I will write again once we have some more results to share. Thanks for your continued thoughts and prayers on our behalf!
Love,
Jack (Michelle, Julia, and Jaclyn)
I call this an update "of sorts" as we really do not have much to update. Several have asked about the test results of Monday's BSGI test, but we still have not heard anything back. Apparently St Paul Radiology did not properly send over the previous mammogram image for the Rads at St John's to use as a comparison (same Rad group reads both?), so as of tonight our primary care doctor did not have any results yet to share (also a reason I haven't blogged for a few days).
Michelle has not been feeling really well lately (the last few days). She has had a headache since Monday night and has had a lot of pain return. She contacted her Immunologist again who is now saying he wants to put Michelle back on more steroids. Michelle's prior steroid pill prescription has tapered off this last Monday so we were hoping that maybe Michelle was feeling some of the "withdrawal" that we were expecting? Michelle went in this evening at the Immunologist's request to get another baseline blood draw for when they start her on steroids again - so we should hear the results of that tomorrow. They will check CK levels and several other things too. An item of praise is that Michelle tested out driving again on Wednesday night and this morning was able to take the girls to Shakopee for an outing with the Boschs and Beckerings! I think she really enjoyed the freedom that comes with that!
The other news is that we're an "empty house" again. We were sad to say "Goodbye" to my brother Mark who left yesterday morning back to West Michigan. We really appreciated the time he spent taking care of the girls, walks to the park, making cookies from scratch with Julia, and two fabulous dinners for all of us! I'm attaching two pictures of one of the park times (Jaclyn and Julia still ask when "Uncle Whiskers" is coming back).
I will write again once we have some more results to share. Thanks for your continued thoughts and prayers on our behalf!
Love,
Jack (Michelle, Julia, and Jaclyn)
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